{"product_id":"meaningful-and-safe-the-ethics-and-ethical-implications-of-patient-and-public-involvement-in-health","title":"Meaningful and Safe: The Ethics and Ethical Implications of Patient and Public Involvement in Health and Medical Research","description":"\u003cp data-mce-fragment=\"1\"\u003e\n\u003cstrong data-mce-fragment=\"1\"\u003eTitle:\u003c\/strong\u003e\n\u003cspan\u003e\u003c\/span\u003eMeaningful and Safe \u003cbr data-mce-fragment=\"1\"\u003e\n\u003cstrong data-mce-fragment=\"1\"\u003eSubtitle:\u003c\/strong\u003e\u003cmeta charset=\"utf-8\"\u003e The Ethics and Ethical Implications of Patient and Public Involvement in Health and Medical Research\u003cbr data-mce-fragment=\"1\"\u003e\n\u003cstrong data-mce-fragment=\"1\"\u003eSubject Classification: \u003c\/strong\u003e\n\u003cspan data-mce-fragment=\"1\"\u003e\n\u003cspan\u003eHealthcare, Medicine and Medical Ethics, Research\u003c\/span\u003e\n\u003cstrong\u003e \u003c\/strong\u003e\n\u003c\/span\u003e\n\u003cbr data-mce-fragment=\"1\"\u003e\n\u003cstrong data-mce-fragment=\"1\"\u003eBIC Classification: \u003c\/strong\u003eMBDC, GP, JFM \u003cbr data-mce-fragment=\"1\"\u003e\n\u003cmeta charset=\"UTF-8\"\u003e\n\u003cstrong data-mce-fragment=\"1\"\u003eBISAC Classification: \u003cspan\u003e\u003c\/span\u003e\n\u003c\/strong\u003e\n\u003cspan data-mce-fragment=\"1\"\u003e\n\u003cspan\u003eMED078000, MED071000, SCI050000\u003c\/span\u003e\n\u003c\/span\u003e\n\u003cbr data-mce-fragment=\"1\"\u003e\n\u003cstrong data-mce-fragment=\"1\"\u003eBinding:\u003c\/strong\u003e\n\u003cspan data-mce-fragment=\"1\"\u003e Hardback, Paperback, eBook\u003c\/span\u003e\n\u003cbr data-mce-fragment=\"1\"\u003e\n\u003cstrong data-mce-fragment=\"1\"\u003ePublication date:\u003c\/strong\u003e\n\u003cspan data-mce-fragment=\"1\"\u003e 20 Sep 2024\u003c\/span\u003e\n\u003cbr data-mce-fragment=\"1\"\u003e\n\u003cstrong data-mce-fragment=\"1\"\u003eISBN (Hardback):\u003c\/strong\u003e\n\u003cspan\u003e\u003c\/span\u003e978-1-80441-545-0 \u003cbr data-mce-fragment=\"1\"\u003e\n\u003cstrong data-mce-fragment=\"1\"\u003eISBN (eBook):\u003c\/strong\u003e\n\u003cspan\u003e\u003c\/span\u003e978-1-80441-546-7 \u003cbr data-mce-fragment=\"1\"\u003e\n\u003cstrong data-mce-fragment=\"1\"\u003eISBN (Paperback): \u003c\/strong\u003e\u003cspan\u003e\u003c\/span\u003e978-1-80441-547-4\u003c\/p\u003e\n\u003cp data-mce-fragment=\"1\"\u003e \u003c\/p\u003e\u003cp data-mce-fragment=\"1\"\u003e\u003cmeta charset=\"utf-8\"\u003e\u003cspan\u003eTo view a sample of the book, please click \u003c\/span\u003e\u003cspan style=\"text-decoration:\" underline data-mce-style=\"text-decoration:\"\u003e\u003cstrong\u003ehere\u003c\/strong\u003e\u003c\/span\u003e\u003c\/p\u003e\n\u003cp data-mce-fragment=\"1\"\u003e \u003c\/p\u003e\n\u003cp data-mce-fragment=\"1\"\u003ee-books available for libraries from \u003cspan\u003e \u003c\/span\u003e\n\n\u003cstrong data-mce-fragment=\"1\"\u003eProquest\u003c\/strong\u003e\n\n\u003cspan\u003e \u003c\/span\u003eand \u003cspan\u003e \u003c\/span\u003e\n\n\u003cstrong data-mce-fragment=\"1\"\u003eEBSCO\u003c\/strong\u003e\n \n\u003cmeta charset=\"utf-8\"\u003e\n\u003cspan data-mce-fragment=\"1\"\u003ewith non-institutional availability from \u003c\/span\u003e\n\u003cstrong data-mce-fragment=\"1\"\u003e\nGooglePlay\n\u003c\/strong\u003e\n\u003c\/p\u003e\n\u003cp data-mce-fragment=\"1\"\u003eFor larger orders, or orders where you require an invoice, contact us  \u003cspan id=\"cloak8074a48c555b85c31ec4347354a45e96\" data-mce-fragment=\"1\"\u003e\nadmin@ethicspress.com\n\u003c\/span\u003e\n\u003c\/p\u003e\n\u003ch5\u003eDescription\u003c\/h5\u003e\n\u003cp class=\"MsoNormal\"\u003e\n\u003cspan\u003ePatient and Public Involvement (PPI) involves working in collaboration or partnership with patients, carers, families, service users, or the public, in planning, designing, managing, conducting, disseminating, and translating research. PPI in health and clinical research has increased exponentially over the last two decades. Despite this, it is not regulated, nor are there any universally agreed standards or ethics applied to PPI in research.\u003cbr\u003e \u003cbr\u003eHowever, health and clinical research is a heavily regulated area and is subject to a great deal of international and national legislation, policy, procedure, and guidance. Included in this is legislation and policy relating to the safe participation of those who are the subjects of research i.e. patients, carers, families, members of the public. They are also protected from harm by research governance and research ethics processes.\u003cbr\u003e \u003cbr\u003eAcademic institutions, health and care systems, and research funders, across Europe and the US encourage and mandate PPI in research, and there is a significant need to educate researchers and prospective researchers across health and care in ethical, effective, and impactful PPI. Many health and care educators offer training modules or courses on how to engage and involve patients and others in the research process. That training may also include patients as educators. This places an onus on academic institutions responsible for training health professionals, and managers to provide research training and build capacity in PPI.\u003cbr\u003e \u003cbr\u003eThis handbook adds to the growing literature relating to PPI in research and provides a reference point and guidance on ethical research involving PPI. It makes an important contribution to the debate about the ethical aspects of involving patients and the public as partners in the design, conduct, and dissemination of research.\u003c\/span\u003e\n\u003c\/p\u003e\n\u003ch5\u003eBiography\u003c\/h5\u003e\n\u003cp class=\"p1\" data-mce-fragment=\"1\"\u003e\n\u003cstrong data-mce-fragment=\"1\"\u003e\n\u003cmeta charset=\"utf-8\"\u003e\n\u003cspan data-mce-fragment=\"1\"\u003eEditor(s):\u003c\/span\u003e \n\u003c\/strong\u003e\n\u003cspan data-mce-fragment=\"1\"\u003eDr. Virginia Minogue is an independent research consultant and advisor, , and mentor, based in the UK. Dr. Jon Salsberg is Associate Professor of Primary Healthcare Research, Public \u0026amp; Patient Involvement, in the School of Medicine, University of Limerick, Ireland.\u003c\/span\u003e\n\u003c\/p\u003e\n\u003ch5 class=\"p1\" data-mce-fragment=\"1\"\u003e\n\u003cspan data-mce-fragment=\"1\"\u003eReviews\u003c\/span\u003e\n\u003c\/h5\u003e\n\u003cp class=\"p1\" data-mce-fragment=\"1\"\u003e\"Patient and public involvement have become popular in healthcare research over the past decade. However, too often, researchers begin to engage patients and community members in research without understanding the ethical implications. And just as often they abandon their engaged partners once a project is funded and underway. What does it mean to genuinely engage patients as co-investigators and co-producers of knowledge? Power, money, and data are all part of engagement. How do these, and myriad other factors create a meaningful and safe environment for patient and public involved research? Meaningful and Safe provides the answers. This book is not a formulaic recipe for patient engagement. Rather, it provides the underlying theory, framework, and values that are necessary for the practical application of patient and public involvement. This book sits on my shelf some of the time but is often on my desk as I point out sections and essential chapters to the students, fellows, faculty, and community members with whom I get to co-create. It is indispensable because it is both academic and practical.\"\u003cbr\u003e- John M (Jack) Westfall, MD, MPH, Professor (ret) Family Medicine, University of Colorado School of Medicine, NAPCRG Past President\u003c\/p\u003e","brand":"Ethics Press","offers":[{"title":"Paperback","offer_id":44866794684458,"sku":"bkc1789710860304","price":25.01,"currency_code":"USD","in_stock":true},{"title":"Hardback","offer_id":44866794717226,"sku":"obn1789710860305","price":88.33,"currency_code":"USD","in_stock":true},{"title":"eBook","offer_id":44866794749994,"sku":"rse1789710860306","price":24.6,"currency_code":"USD","in_stock":true}],"thumbnail_url":"\/\/cdn.shopify.com\/s\/files\/1\/0721\/0709\/8154\/files\/meaningful-and-safe-the-ethics-and-ethical-implications-of-patient-and-public-in_1.jpg?v=1789710865","url":"https:\/\/layerreadywear.shop\/products\/meaningful-and-safe-the-ethics-and-ethical-implications-of-patient-and-public-involvement-in-health","provider":"My Store","version":"1.0","type":"link"}